Hello Everyone,
My son Nicholas has a rare disorder called Angelman Syndrome, for th epast few years I have been the chair person for the Philadelphia location. Please take afew moments to look over the information below and learn more about this syndrome.
Feel free to join us may 16th, 2008 at Cooper River Park, Pennsauken NJ - Registration starts at 8am!
The Angelman Syndrome Foundation is excited to announce our National Walk-A-Thon
Online Registration and Walk Personal Fundraising Pages are now open at www.angelman.org.
Visit www.angelman.org/walk-a-thon to learn more.
Together we can raise over $1 million dollars to advance the awareness and treatment of Angelman Syndrome through research, education, information, and support for individuals with Angelman Syndrome, their families, and other concerned parties. "...Saturday, May 16, 2009 the ASF National Walk-A-Thon will be held in 24 cities across the US. Today your participation is more critical than ever. Currently, more individuals are being correctly diagnosed with Angelman Syndrome and they, and their families, need our help and support. You may be a part of one of these families or their support network. Participation in the ASF National Walk-A-Thon not only supports others, it supports you and your family as well. Each local walk site offers its own unique opportunities to meet and network with others who know and understand all of the challenges and joys faced on a daily basis in caring for an individual with Angelman Syndrome. This is an opportunity for you, your family and your support network to strengthen relationships and supports for your loved one and your family..." To read more of this inspiring message from ASF Executive Director, click here.
The 2008 ASF Walk Newsletter is now available for download.
The 2008 Walk Newsletter is a testament to the many donors, volunteers, sponsors and coordinators that helped to make the 2008 ASF Walk-A-Thon a huge success. We thank them for a wonderful year! Visit www.angelman.org under ASF News and Announcements to download your copy. Please be aware that the file is very large and filled with pictures so it may take awhile to download.
In 2009 walk with us in:
Buffalo, NY; Carson City, NV; Chicago, IL; Cincinnati, OH; Columbia, SC; Dallas, TX; Denver, CO; Des Moines, IA; Detroit, MI;
Ft. Lauderdale, FL; Houston, TX; Lafayette, LA; Las Vegas, NV; Minneapolis, MN; Mobile, AL; Nashville, TN; Omaha, NE; Philadelphia, PA;
Pittsburgh, PA; Sacramento, CA; Salt Lake City, UT; San Diego, CA; St. Louis, MO; and Washington, DC!
As a reminder, all Walk Personal Fundraising Pages have been moved to the Angelman Syndrome Foundation website. We are no longer using a third-party (non-ASF) personal fundraising page company. You are now able make your page and raise funds to support the walk of your choice.
Visit www.angelman.org today!
